Meet Wyatt Bruno

Wyatt is a two-year-old boy diagnosed with a rare genetic condition called Coffin-Lowry syndrome. He has already faced significant medical challenges in his young life, including a week-long hospitalization for a blood infection at 8 months old and another week-long stay for RSV at 16 months. Around 6 months of age, we began noticing delays in his motor development, which led to early intervention through physical therapy. As concerns about his overall development continued, genetic testing was pursued. During his second hospitalization, we received the diagnosis of Coffin-Lowry syndrome.

Coffin-Lowry syndrome is a rare genetic disorder caused by a mutation in the RPS6KA3 gene on the X chromosome. It primarily affects development, learning, and physical growth and is often more severe in males. Individuals with this condition may experience developmental delays, intellectual disability, speech and motor challenges, and physical differences such as low muscle tone and skeletal abnormalities. While there is no cure, ongoing therapies and medical support can significantly improve quality of life and developmental outcomes.

Wyatt currently participates in weekly speech, occupational, and physical therapies, as well as the Infants and Toddlers program. He is also followed closely by a team of specialists, including pulmonology, cardiology, ENT, audiology, immunology, orthopedics, neurology, neurosurgery, and plastic surgery. Over the past year, Wyatt has made meaningful progress both physically and developmentally, which we attribute to his dedicated therapists, family and the strong support system at his daycare.

Although Wyatt continues to make great strides, he will require ongoing therapies and medical support to help him reach his fullest potential. We remain committed to ensuring he has access to all necessary resources to support his growth, independence, and overall quality of life. While the future is uncertain, we are focused on providing Wyatt with every opportunity to succeed and live a meaningful life. We are incredibly proud to be his parents and will continue to advocate for him every step of the way.

We are deeply grateful for the opportunity for him to be selected as the beneficiary of the 2026 Tangier Classic. Sharing his story helps raise awareness for Coffin-Lowry syndrome and highlights the importance of early intervention, ongoing support, and community involvement.”